News

National Handcycle Series

Several teams lining up for the inaugural team relay at the National Handcycle Series

Around 20 hand and trike cyclists converged on Echuca over the last weekend in February 2012 for the third round of the National Handcycle Series. For the spectator, highlights included the carbo loading dinner at Ian Harrison’s CapeHorn Vineyard, and the inaugural Team Relay event on Saturday evening. Results from the time trial, road race and team relay are available on the National Handcycle Series Facebook site.

Ian Harrison demos his pizza oven at Capehorn Vineyard

Story of a peer mentor

Harold Hartfield

Harold began volunteering at Caulfield 12 months ago on a casual basis, preferring to go in unannounced on the weekend every week.

Harold spent 6 months in hospital in 1993 after a car accident left him with a C6 incomplete injury.  During that time and in the first year at home, while he was problem solving in regards to a largely inaccessible house, building his strength and skills he thinks that it would’ve been really helpful to talk to someone with similar experiences.

“It’s a catastrophic change of life, both physically and emotionally.”

“I think I’ve got something to give back. When I had my injury I had no one to talk to… Seeing people getting on with life and achieving things is sure to help.”  And he’s had an overwhelmingly positive reception from patients, who he says, are very happy to talk and they often will light up when he mentions he’ll see them the following week.  He remains amazed at the positive outlook many patients can maintain.

He enjoys meeting all sorts of people from different backgrounds and connecting with them on common ground.  He says that the experience of mentoring has increased his awareness of the full extent of the upheaval he went through, reconnecting to that in a positive way to help those he meets with.  Patience, the importance of seeking assistance and looking beyond the horizon to what can be are all qualities that he believes are important during the recovery phase.

To remain positive and to be a good listener without judging are what Harold believes to be the most important skills for a mentor.  Along with that is the ability to be resourceful in answering questions, and to maintain a continuity of contact with patients.  He also believes the ability to approach potentially delicate subjects such as bladder and bowel concerns is a must.  Over his time there he’s learnt when to stand back and a sense of timing when approaching patients.

His advice for people thinking of mentoring is to try it out, it’s not for everyone, it most of all requires great people skills.  All going well it can intangibly give you an enormous amount back.

Share your stories on SpinalHub

SpinalHub is here to help share your stories and experiences.

If you have a story you would like to share, or tell others about something you have learnt, you are very welcome to email it to SpinalHub and we can post it for you in this news section.

Likewise if you know of an event that would be worth publicising to others, we can post it for you under events. Just follow this link.

You can also post stories and information yourself in the community forum.

Welcome to SpinalHub

spinahub

We are really excited to launch this site and we hope that it will be useful to all who visit it. SpinalHub has come about because of a shared vision to assist you to:

  • find information about spinal cord injury that is up to date and relevant
  • connect with others who may be in a similar situation
  • share ideas and experiences about living with a spinal cord injury.

We encourage you to explore the site, give us feedback, register to use the forum, ask questions, but above all to share your unique experiences.

Coming soon

  • Video upload facility – to share your experiences
  • Downloadable ‘How to’ videos
  • Latest information about spinal cord injury research
  • More experiences from you – the user – about living with SCI
  • Tips and stories from others about life experiences
  • Interviews with members, medical specialists, researchers, etc.

Australian Stem Cell Centre

A question often asked of researchers and clinicians in the field of spinal cord injury rehabilitation, is what is the status of stem cell research in Australia and stem cell research and treatments overseas.
To address these questions and assist you in making fully informed decisions the Australian Stem Cell Centre has developed an information handbook. Produced in April 2011, it is available to download from the Australian Stem Cell Centre website.

Story Board Project

storyboard2

Back in 2005, some people got together to capture the experiences and lives of people in Victoria living with spinal cord injury in the Story Board Project. These people are from all walks of life, and SpinalHub will be featuring their stories in future blogs.

 

A basketball team for ‘first timers’

basketball player in wheelchair with ball in action

It can be daunting getting involved in sport again after injury. Team sport can be a great option. There’s the opportunity of camaraderie, equipment is around for you to borrow, and it’s great having team members to learn from, and inspire you! Campbell Message from the Community Integration and Leisure Service at Royal Talbot set about creating a basketball team for ‘first timers’ in early 2010. The team – known on the circuit as Talbot Tornados – has gone on to prove that being new doesn’t mean coming last.

At the end of their forth season of competition, Talbot Tornados put up a feisty display beating their rivals by 6 points in the finals of B Grade in the Knox competition. If you are interested in playing in the wheelchair basketball comp and you are not sure where to start, you can contact Disability Sport and Recreation Victoria.

Community forum – ‘Stem Cells: Hope, Hype and Progress’

stemcell

In July 2011 AQA Victoria hosted a community forum ‘Stem Cells: Hope, Hype and Progress – A New Conversation on Stem Cells and Spinal Cord Injury’. This offered the opportunity to hear and learn from a number of different presenters …

Story Board no. 1: Introducing Daryl Morgan

Cattle farmer, poultry breeder and husband with C6-C7 quadriplegia.

I was raised in the city but was always mad about animals and birds. I started farming in my early 20s, and milked cows for 25 years before my accident.

Getting back to farming gave me a life again. Gil and I run beef cattle and sheep, and I breed poultry: chooks, pheasants, partridges, ducks, guinea fowl and pigeons.

Farmers are doers rather than talkers. I’ve had to learn to be a talker, to explain what to do without demonstrating. Passing knowledge on to others can be very rewarding. I get into the cattle yards and do my bit. Feeling useful is important to anyone.

I get around the farmyard in my four-wheel-drive chair. I’ve attached lights for spotlighting, and a car horn that gives a blast! I’ve had tendon transfer operations, so I can open most gates now without assistance. And ‘AgrAbility’ gave us great ideas about modified farming equipment.

You mustn’t be timid in your chair – that won’t get you anywhere. You’ve got to get out and have a go. Gil’s support is great and we’ve had some good laughs. After all, we’re here for a good time, not a long time!